Hyperacusis Priority Setting Partnership (PSP)

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We want to find the Top 10 research priorities about Hyperacusis. We recently surveyed 312 people (adults/children experiencing hyperacusis, parents, carers, teachers, health professionals and members of the public who work with and support those who experience hyperacusis) about their experiences with hyperacusis and questions they had about hyperacusis. We have checked the questions have not already been answered by research, and group similar “unanswered” questions together. From this, we have produced a list of “unanswered” questions that we now need you to vote for the Top 10 questions you think are most important for research to target. Please vote now by clicking on the link below:

https://4e513778.optimalworkshop.com/optimalsort/hyperacusispsp-0

The survey will take no more than 15 minutes to complete. For the project to work, we need to get as many responses as possible from people who have lived experience of hyperacusis, so adults and children experiencing hyperacusis, and carers, parents, family, teachers, members of the public and health professionals who work with and support those who experience hyperacusis. You do not have to have taken part in any previous studies.

Participate now

What happens next?

With the information we collect, we will hold a final consensus meeting with people with hyperacusis and those who care and support people with hyperacusis to agree the Top 10 priorities for research that the questions that are important to people who have Hyperacusis or care for a person with Hyperacusis are answered.

We need people to join us at the final consensus meeting, if you would like to register for a place at the meeting without obligation please e-mail the team using this e-mail:

JLAHyperacusis@nottingham.ac.uk

Register for consenus meeting now:

JLAHyperacusis@nottingham.ac.uk

Why do this?

At the NIHR Nottingham Biomedical Research Centre we recently expanded one of our research programmes to have a dedicated strand of work on hyperacusis.  To help prioritise the work that we and others conduct, we are working together with the James Lind Alliance (JLA) in a Priority Setting Partnership (PSP) around Hyperacusis and adults experiencing hyperacusis, parents, carers, teachers, health professionals and members of the public to make sure that we find out what really matters most to people who have lived experiences and knowledge of hyperacusis. Turning what matters most into priority questions that will have a real and lasting impact on future research

Watch this video to find out more about this project

(it can be muted and subtitles are available by clicking on the buttons in the menu bar at the bottom of the video):

What is hyperacusis?

Hyperacusis is a hearing disorder involving an increased sensitivity or decreased tolerance to sound at levels that would not trouble most individuals. For the person experiencing hyperacusis everyday sounds can be unpleasant, intense, frightening, painful and overwhelming, and can cause anxiety and distress. This can have a significant effect on life. For example, it can interfere with education, the ability to work and/or participate in social and family life.

In partnership with:

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