What will I need to do if I take part?
In taking part, you will complete a series of three surveys. These can be completed online on a computer or tablet in your home. The surveys will list ways in which tinnitus may have an impact on a person (complaints, such as sleep problems associated with tinnitus). You will be asked to identify those complaints (we also call these 'aspects') that you feel are the most important to treat. This is in relation to whether you are considering sound-based, psychology-based or drug-based treatments.
Before we send you the link to the first survey, we will ask you to confirm which of the treatment types you have experience with (or have considered trying). We will then ask you to complete surveys on the treatment type that you have most experience with (or have considered most).
If you have experience with (or have considered) more than one treatment type, you will have the option to complete surveys on more than one treatment type.
We shall send you a link to the survey online for the treatment type(s) agreed
What is involved in completing the survey:
- The surveys will ask you what you think are the most important aspects of tinnitus to measure when deciding if a treatment is working.
- Each survey includes questions that will each take about 90 minutes to complete. You will be able to take breaks.
- Each survey will be sent separately, one after another, over a period of 5 months.
- After you have received the link, you will have up to 3 weeks to complete each survey.
- If you wish to complete surveys on more than one treatment type, you will complete each one separately. This will take more time.
Survey round 1:
- You will be asked to rate the importance of each aspect of tinnitus in deciding whether a treatment is effective. To do this you will use a simple 1-9 scoring system.
- You will be given the chance to add any aspects of tinnitus that you feel we have missed from the list.
Survey rounds 2 and 3:
- We will remind you of the previous scores you gave and show you a summary of others’ scores.
- These scores will be grouped according to whether those taking part have tinnitus, treat tinnitus, research tinnitus, are involved in the commercial development of treatments for tinnitus or make funding decisions about tinnitus research.
- Based on this information, you will have the chance to change or keep your score the same.
- No-one else will be able to see your individual score or know who you are.
After round 3 is complete, there will be a group meeting to discuss and agree on the list of important aspects to be included in the Core Outcome Set, based on the survey results.
This meeting will be held in the United Kingdom (expected June 2017). There will be limited places so please register your interest in attending the meeting with the research team.