Who we are

The purpose of the James Lind Alliance (JLA) Priority Setting Partnership (PSP) is to enable patients, carers and clinicians to come together on an equal footing to identify research questions, and then to prioritise them.

JLA logo

Each PSP consists of people with lived experience of a condition such as patients and carers, health and social care professionals and members of groups that represent all their interests. PSPs are led by a steering group with an independent chair from the James Lind Alliance. Collaboration of this sort, where people who have lived experience of a health problem, carers, teachers, and health care professionals work together set the research agenda is vital to driving research that will make the most difference.

Further information can be found on the JLA website.

The Hyperacusis PSP is being driven by Dr Kathryn Fackrell and Dr Derek Hoare at the NIHR Nottingham Biomedical Research Centre. 

Steering group

The project is being led by a steering group comprising people who have lived experience of hyperacusis including adults experiencing hyperacusis, parents, carers and health professionals (audiologists, ENT doctors, and psychologists). Toto Gronlund from the James Lind Alliance is our independent chair of the steering group.

The project is being supported by our partner organisations:

Action on Hearing Loss

The British Society of Audiology (BSA)

Space4Autism

British Association of Autovestibular Physicians

Williams Syndrome Foundation group